Today, Gladiator.

The thing that I don’t often speak of, as parent of a child with special needs, is the never-ending fight to make sure that your child is being cared for, educated and treated in such a way that will allow him or her to fulfill their ultimate potential. The level of vigilance that is required on a daily basis, to ensure all members of the team are consistently acting in the best interest of your child… 

It’s imperative, but exhausting. 
Not to mention managing the team!
Coordinating multiple providers of therapy, several days a week, both private and within schools, with the team of educators, after school care providers, coaches and family. Turning down the rare play-date invites that do arise because our therapy schedule often won’t allow it, but fully knowing that the therapy is providing more progress than we’ve ever seen before! So we stay the course…
Pushing on, knowing that we are fighting for what is right for our child.

That being said…

Friends in education, please keep this in mind when you see us in an IEP or ARD meeting and we are depleted, defensive and emotional. That meeting simply represents another step and we aren’t yet sure if it is going to result in the creation of a team of champions, or  require us to gear up for the role of gladiator, yet again, in another fight for what our child needs.

“The credit belongs to the man who is actually in the arena, whose face is marred by dust and sweat and blood; who strives valiantly; who errs, who comes short again and again, because there is no effort without error and shortcoming; but who does actually strive to do the deeds; who knows great enthusiasms, the great devotions; who spends himself in a worthy cause; who at the best knows in the end the triumph of high achievement, and who at the worst, if he fails, at least fails while daring greatly…” Theodore Roosevelt
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